Sorry for the late update...
Bryan was released to go home Friday morning. He is doing great and very glad to be home!
All that is left now in this whole ordeal is to get the staples removed. That will happen this coming Friday and he doesn't have to go back to Boston to do it. There is a local place that will remove them for him.
God has been so good and has been so faithful. Praise God it's all over now!
Thank you for all your prayers and support!
Monday, April 28, 2008
Thursday, April 24, 2008
Bryan is going home on Friday
Bryan had an Angiogram this morning and the drs said he is in great condition. This last surgery has cleared him completely. He will no longer have any more problems in this area. The Dr has also cleared Bryan to go home tomorrow.
It's amazing to think that tuesday he had brain surgery and 3 days later he is going home. Now Bryan and Becky can put this behind them and get on with their lives.
Thanks for your prayers. God is good!
It's amazing to think that tuesday he had brain surgery and 3 days later he is going home. Now Bryan and Becky can put this behind them and get on with their lives.
Thanks for your prayers. God is good!
Wednesday, April 23, 2008
Update
Bryan had a good night last night and he is doing really well today. He is still in the ICU for the moment. He has been sleeping mostly, but has also gotten up to eat and help mom with a crossword puzzle.
As of earlier this afternoon, there was still no word about whether or not he will be moved to a regular room, but like last time, they didn't move him until the end of the day. Bryan was also hoping to get up a walk around.
Praise God he is doing well and has a sense of humor
As of earlier this afternoon, there was still no word about whether or not he will be moved to a regular room, but like last time, they didn't move him until the end of the day. Bryan was also hoping to get up a walk around.
Praise God he is doing well and has a sense of humor
Tuesday, April 22, 2008
Bryan is out of surgery
Bryan is out of surgery and in recovery. The Dr said it went very well and when he was able to check on Bryan afterward, he said everything looked great.
The surgery was from about 7:30am to 12:30pm today. When I last heard from our mom, she said that Bryan was sleeping.
Bryan is going to stay in recovery for a while and then be moved to the ICU for the night. They are keeping his blood pressure low for now just until his brail and the blood flow adjust.
He will be moved to a regular room tomorrow and will hopefully come home by Saturday.
Thank you again for all your prayers. God is good!
The surgery was from about 7:30am to 12:30pm today. When I last heard from our mom, she said that Bryan was sleeping.
Bryan is going to stay in recovery for a while and then be moved to the ICU for the night. They are keeping his blood pressure low for now just until his brail and the blood flow adjust.
He will be moved to a regular room tomorrow and will hopefully come home by Saturday.
Thank you again for all your prayers. God is good!
Saturday, April 19, 2008
Bryan is going in for surgery again....
FROM BRYAN:
We are almost out of the woods. I have one more sugery to go through. The large AVM which they embalized still had a vein ortwo connected to it. Our options are either to radiate it which has a 80% sucess rate is not invasive but it takes up to three years to work.
We are almost out of the woods. I have one more sugery to go through. The large AVM which they embalized still had a vein ortwo connected to it. Our options are either to radiate it which has a 80% sucess rate is not invasive but it takes up to three years to work.
The other option is to do sugery (which obviously is very invasive) but when done will 100% cure me. We have decided to opt for the sugery. I go back to Boston this Monday (the 21st) and my sugery is at 6:00 AM on Tuesday. If you could all pray for me I would be very greatful. If all goes well I will be back home by next weekend and back to work in another week or two. We will keep you all up to date. Thank you all for your prayers.
Bryan
Tuesday, March 4, 2008
Update from Bryan
Hello all, sorry it has taken me so long to post another message. I have been working on my balance and making Becky feel comfortable with my balance so she would feel OK going back to work this week. After my last message I actually went back and read the blog for the first time and realized that Jenny had done a great job with the timeline of events, so I don't really have anything to add there. Up until then Becky and Mom had only read me your posts and not what Jenny was writing. She did a great job and actually reminded me of a few things I had forgotten.
Since my last post: Last Friday I went back in to Boston to have my staples removed. I was a little nervous and excited for several reasons and didn't get much sleep that night. First, my Dad was driving us and there was a big snow storm coming in that morning. He was nervous about driving in the storm, but I begged and pleaded and he finally relented and took us, but instead of leaving at 10:00 we left at 8:00 hoping to avoid the snow which started falling Thursday night. We made it to and from Boston without any issues and the roads didn't get bad until we were about 15 minutes from home.
Second, as you can imagine, they were taking staples out of the back of my head and they said they weren't going to numb me because it wouldn't hurt. Others said the same thing, but none of them had staples in the head. Plus this was just a walk in, and you don't schedule an appointment. Well we got there and I walked all the way there down two long corridors and an elevator with just holding Becky's hand. Dad waited with the car out front until we knew how long it would take. Not more than ten minutes later we were walking back to the car. THAT was a miracle, and believe it or not the staples didn't hurt at all, it just felt like someone was itching the back of my head, which believe me felt really really good.
On the way home we stopped for a bite to eat at a regular restaurant (first time out in public) and we had a good time. Since then I have been just working on my balance and strength, which has been improving tremendously every day. I am down to one medication which I still have to take twice a day but hopefully I will be off of it soon. My appetite has returned with great gusto. In fact I am eating more than I ever have =). I am going back to Boston next Friday for a check up with my Doctors and I should have more info then. When I get back I will send another post to update you all on everything.
Thank you all again for everything you have done for Becky and I. Your support has been a great source of strength for me. You are all near and dear to my heart. Have a great week and I will talk to you again next Friday or Saturday.
Love Bryan
Friday, February 22, 2008
From Bryan:
Dearest Family, Friends, and Those of I’ve never met,
Words will never express the gratitude I feel for all of your support and postings through this blog. The last month has definitely been a challenge for my family, but has shown above all else God’s grace and perfect plan. Your postings were one of the greatest sources of strength I had through this whole ordeal. Everyday I asked my family to read the new postings, usually several times a day and they were a great source of comfort. It’s humbling to think that so many people have been praying for me and my family through this time – I am still very overwhelmed. The road to recovery is going better everyday. I am walking by myself, although Becky is within 4 inches at all times, and I’m having my staples removed Friday (2/22). I know this is a fairly impersonal way of thanking everyone, but I promise it’s only the beginning. I pray that God bless every one of you seventy times over for the way you have blessed me. If anyone wants to e-mail me, I would be happy to respond, my e-mail address is bryan.kaye@gmail.com. Thank you all again and thank you Jenny for setting up this amazing source of encouragement for me. I’ll send one more post in a week or so outlining the series of events that God so perfectly set up for this situation because when you see how he set this whole plan up starting over a year ago it will really blow your mind. Thanks again!
Bryan
Wednesday, February 20, 2008
update
Bryan is doing really well. He is loving the fact that he's home, in his own bed, with his own things. He's come to appreciate the little things that he missed while at the hospital.
He is recovering well. He is headed back to Boston on Friday to get the staples out from the last surgery.
Bryan is going to post his own "blog" here when he gets a chance (his goal is Friday).
So be watching for it...
He is recovering well. He is headed back to Boston on Friday to get the staples out from the last surgery.
Bryan is going to post his own "blog" here when he gets a chance (his goal is Friday).
So be watching for it...
Saturday, February 16, 2008
we have seen a miracle
BRYAN IS ON HIS WAY HOME!!! GOD IS GOOD!
The next post will hopefully be from him, at home.
Thank you so much for all the support and prayers you have given Bryan and the family. Please continue to pray for Bryan as he recovers at home.
Friday, February 15, 2008
just to keep you posted
Bryan has been doing very well physically. Yesterday he had experienced some "fiery darts", where he was vulnerable most. But as always, God is good and continues to provide for him.
His first night out of the ICU was a little rough because of the new room, a roommate, and so much more noise. Last night he had some headphones and fell asleep to Praise Music, and slept well.
This morning they took out the last IV so Bryan is more mobile, able to move around. They also changed his bandage. So he is all ready to go home, just waiting on the official OK.
Bryan specifically asked for the warriors to keep praying against anymore of those "fiery darts", and especially for a quick recovery and the ability to sleep in his own bed tomorrow night. Bryan is determined and in good spirits toady.
His first night out of the ICU was a little rough because of the new room, a roommate, and so much more noise. Last night he had some headphones and fell asleep to Praise Music, and slept well.
This morning they took out the last IV so Bryan is more mobile, able to move around. They also changed his bandage. So he is all ready to go home, just waiting on the official OK.
Bryan specifically asked for the warriors to keep praying against anymore of those "fiery darts", and especially for a quick recovery and the ability to sleep in his own bed tomorrow night. Bryan is determined and in good spirits toady.
Thanks!!
Thursday, February 14, 2008
prayer needed for strength
Bryan was a little down today. Being out of the ICU and in a new room was another adjustment for him. He didn't get much sleep last night because of the noises and interruptions. He is trying to get used to a new schedule, deal with physcial therapists and just a new atmosphere which is not as attentive as the ICU.
Please pray for strength and encouragment and a speedy healing so Bryan can be home by the weekend.
thank you!!
Please pray for strength and encouragment and a speedy healing so Bryan can be home by the weekend.
thank you!!
Happy Valentine's Day
Today America celebrates love. The Kaye's have much to celebrate too and have experienced "how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God" (Eph 3:18-19). Also, the love and prayers and support from all of you, all over the world, have truly been overwhelming. There are no words to express how thankful and appreciative we all are.
Bryan just wanted to rest yesterday. He said the surgery was very painful and he didn't want to do anything yesterday but sleep and be quiet.
After they moved Bryan out of the ICU, he bounced back quickly. He is EXTREMELY ready to go home. He has already planned his meals and what he's going to do. He wants steak and he is planning to organize his games and fix their boxes. :)
Today he is going to clean up and hopeful walk around a little bit. Like I've said before, Bryan loves those comments... I believe they, along with all the prayers, have been a huge factor in his quick recovery. They are such a blessing to him.
HAPPY VALENTINE'S DAY!!!
Bryan just wanted to rest yesterday. He said the surgery was very painful and he didn't want to do anything yesterday but sleep and be quiet.
After they moved Bryan out of the ICU, he bounced back quickly. He is EXTREMELY ready to go home. He has already planned his meals and what he's going to do. He wants steak and he is planning to organize his games and fix their boxes. :)
Today he is going to clean up and hopeful walk around a little bit. Like I've said before, Bryan loves those comments... I believe they, along with all the prayers, have been a huge factor in his quick recovery. They are such a blessing to him.
HAPPY VALENTINE'S DAY!!!
Wednesday, February 13, 2008
exciting update
Bryan had a good day... still recovering. He had some dinner tonight.
A few hours ago, they moved Bryan out of the ICU!!!! He is now in a regular room and they removed all of the ICU monitoring tubes and such. So he'll be more confortable and most likely home by Saturday.
WOO-HOO
A few hours ago, they moved Bryan out of the ICU!!!! He is now in a regular room and they removed all of the ICU monitoring tubes and such. So he'll be more confortable and most likely home by Saturday.
WOO-HOO
this morning
Merrie wanted me to share this with you:
Bryan is resting, but uncomfortable, just like the doctors said he would feel for 48 hours after the surgery. Merrie thinks it's the first time in Bry's life he didn't wanna socialize. He literally wants to be left alone and quiet.
He told Becky this morning he felt like his head was sleeping on a rock, but with pain meds and anti-nausea medication he is resting as comfortably as possible considering the trauma his head went through yesterday.
This morning-10:30am- he is having a final CAT scan and angiogram to confirm the 100% success of all 4 of his brain procedures. Bryan's surgeon did say that after the 48 hours of being uncomfortable, he would bounce back quickly and start begging to go home. We are anticipating Bryan will finally be moved out of ICU (he's been there 2 1/2 weeks) and onto a regular floor. Then hopefully allowed to come home on Saturday.
Becky and Merrie felt this morning that their "cups runneth over" even though we have all walked though the "Valley of the Shadow of Death" we never did have "fear of evil". "God's rod and his staff" were truly our comfort. They are rejoicing because God is really such an awesome Shepherd.
I will give another update with the results of the tests later this afternoon.
update: the CAT scan and Angiogram showed that everything is great. All 4 procedures were very successful.
Bryan is resting, but uncomfortable, just like the doctors said he would feel for 48 hours after the surgery. Merrie thinks it's the first time in Bry's life he didn't wanna socialize. He literally wants to be left alone and quiet.
He told Becky this morning he felt like his head was sleeping on a rock, but with pain meds and anti-nausea medication he is resting as comfortably as possible considering the trauma his head went through yesterday.
This morning-10:30am- he is having a final CAT scan and angiogram to confirm the 100% success of all 4 of his brain procedures. Bryan's surgeon did say that after the 48 hours of being uncomfortable, he would bounce back quickly and start begging to go home. We are anticipating Bryan will finally be moved out of ICU (he's been there 2 1/2 weeks) and onto a regular floor. Then hopefully allowed to come home on Saturday.
Becky and Merrie felt this morning that their "cups runneth over" even though we have all walked though the "Valley of the Shadow of Death" we never did have "fear of evil". "God's rod and his staff" were truly our comfort. They are rejoicing because God is really such an awesome Shepherd.
I will give another update with the results of the tests later this afternoon.
update: the CAT scan and Angiogram showed that everything is great. All 4 procedures were very successful.
Tuesday, February 12, 2008
"GREAT IS THY FAITHFULNESS"
The surgery is done!!
At 7:20pm the Dr came out to the waiting room, where Becky, Joe, and Merrie were, and said that the surgery was very successful. They got out the AVM and cleaned up the original bleed. He also said the risk of bleeding again over the next 24 hours is much lower because of the success of the surgery.
They are getting Bryan out of the anesthsia now and wheeled him to his ICU room. Joe is headed home because of the huge snow storm approaching, but Merrie and Becky get to go see him in about 45 min.
Bryan will be uncomfortable for a few days, but then he will be ready to go home this weekend. After the next 24 hours in the ICU, they will move Bryan to a regular room while he recovers for a few days.
God is so faithful and so good. Thank you for praying. Please continue to pray for Bryan as he goes through recovery. Keep the comments coming, Bryan really looks forward to them.
At 7:20pm the Dr came out to the waiting room, where Becky, Joe, and Merrie were, and said that the surgery was very successful. They got out the AVM and cleaned up the original bleed. He also said the risk of bleeding again over the next 24 hours is much lower because of the success of the surgery.
They are getting Bryan out of the anesthsia now and wheeled him to his ICU room. Joe is headed home because of the huge snow storm approaching, but Merrie and Becky get to go see him in about 45 min.
Bryan will be uncomfortable for a few days, but then he will be ready to go home this weekend. After the next 24 hours in the ICU, they will move Bryan to a regular room while he recovers for a few days.
God is so faithful and so good. Thank you for praying. Please continue to pray for Bryan as he goes through recovery. Keep the comments coming, Bryan really looks forward to them.
almost done
A nurse just called and said that they got the whole AVM and they are now just finishing up. He is doing well and should be done on schedule. He will be groggy for a while but the next 24 hours are the most critical. Keep praying!
little update
They took Bryan on time 1pm(est). The nurse came out around 3 and said he's doing great. He is still on schedule to be done at 5pm.
Monday, February 11, 2008
Outlook for Tuesday
Merrie wanted you all to know:
Monday night 7:30pm the neurology team came by to explain Bryan's surgey which is set for around 1pm, Tuesday (tomorrow). The top neurologist, Dr. Heilman-cheif of neurosurgery, will be performing the surgery, with Dr. Malek in attendance. Dr. Heilman is considered one of the best neurosurgeons in the world. ("Only the best for Bryan") Bryan, Becky, Joe, and Merrie felt very comfortable after he explained the procedure.
Surgery will take about 5 hours with the highest risk being the following 24 hours. With no complications during the recovery, Bryan should be able to go home this weekend. YAY!
Dr Heilman felt that his vision and imbalance should be 95% recovered within 2 months and 100% by next year at this time. His golf game should not be affected at all this summer, which made Bryan smile.
Please keep Bryan in your prayers, especially during the surgery- 1-7pm- and then the following 24 hours.
I will post an update on the blog when Bryan goes into surgery and then afterwards.
Bryan will be unable to eat after midnight tonight, but is planning a chocolate chip cookie snack just before midnight. :)
Bryan and family has been so blessed by all the prayers and cards and support... it has been overwhelming.
Monday night 7:30pm the neurology team came by to explain Bryan's surgey which is set for around 1pm, Tuesday (tomorrow). The top neurologist, Dr. Heilman-cheif of neurosurgery, will be performing the surgery, with Dr. Malek in attendance. Dr. Heilman is considered one of the best neurosurgeons in the world. ("Only the best for Bryan") Bryan, Becky, Joe, and Merrie felt very comfortable after he explained the procedure.
Surgery will take about 5 hours with the highest risk being the following 24 hours. With no complications during the recovery, Bryan should be able to go home this weekend. YAY!
Dr Heilman felt that his vision and imbalance should be 95% recovered within 2 months and 100% by next year at this time. His golf game should not be affected at all this summer, which made Bryan smile.
Please keep Bryan in your prayers, especially during the surgery- 1-7pm- and then the following 24 hours.
I will post an update on the blog when Bryan goes into surgery and then afterwards.
Bryan will be unable to eat after midnight tonight, but is planning a chocolate chip cookie snack just before midnight. :)
Bryan and family has been so blessed by all the prayers and cards and support... it has been overwhelming.
the weekend
Bryan had a good weekend. Lots of R&R and some visitors.
He had 2 MRIs just to keep an eye on how things are going.
He goes into his surgery tomorrow at around noon. Please keep him in prayer.
I'll keep you updated when I hear more. :)
He had 2 MRIs just to keep an eye on how things are going.
He goes into his surgery tomorrow at around noon. Please keep him in prayer.
I'll keep you updated when I hear more. :)
Saturday, February 9, 2008
Saturday
Merrie, Bryan, and Becky were laughing last night thinking it's really bad when you get excited about brain surgery... hee hee. But with all that Bryan has been through the last 2 weeks, brain surgery is the simple part.
Bryan was scrubbed this morning and Becky was able to finally wash his hair. He is ready for a few visitors this weekend.
After the surgey on Tuesday, believing everything will go smoothly, Bryan will be ready to go home on Friday or Saturday. He is really looking forward to seeing Annie (their dog), having a hot shower with water pressure, sleeping in his own bed without constant intrruptions and flash lights in eyes.
Becky and Bryan appreciate all the comments, concerns, cards, prayers, and well wishes.
Bryan was scrubbed this morning and Becky was able to finally wash his hair. He is ready for a few visitors this weekend.
After the surgey on Tuesday, believing everything will go smoothly, Bryan will be ready to go home on Friday or Saturday. He is really looking forward to seeing Annie (their dog), having a hot shower with water pressure, sleeping in his own bed without constant intrruptions and flash lights in eyes.
Becky and Bryan appreciate all the comments, concerns, cards, prayers, and well wishes.
Friday, February 8, 2008
results
After the angiogram today, the doctor said every looks really well and Bryan's brain is functioning normally and has adjusted to the changes! Praise God!
He is scheduled for surgery on Tuesday at noon. They are going to actually go in there and take out the smaller AVM to prevent the chance of it bleeding again.
Thank you again for the support and prayers!
He is scheduled for surgery on Tuesday at noon. They are going to actually go in there and take out the smaller AVM to prevent the chance of it bleeding again.
Thank you again for the support and prayers!
TGIF
Merrie wanted me to share this with you:
It's been 14 days since Bryan had that first small bleed which was the warning signal for greater problems going on in his brain that would have otherwise been missed. So literally we are grateful for "little things". The family has settled into a hospital habit.... Becky is at Bryan's room at 8am while Merrie sleeps in and arrives around 11am so that Becky can go back to the hotel for a rest in the afternoon. The past several days they have done lots of crossword puzzles, played card games, and talked quietly. Sometimes Bryan participated, sometime he rested. Over the past week he has had Chinese food, Pizza, McDonald's burger, and Grandma June's Chicken noodle matzo ball soup. He enjoyed everything, but the chicken soup really did minister to his soul. Merrie and becky survive on PB&J, breakfast sandwich, cereal bars, and sandwihes from the little shop by the hospital entrance. Joe continues to visit brining the mail (thanks for all the cards, keep them coming), the laundry, bottled water, etc.
Today they have scheduled Bryan for another angiogram hopefully around 11am. Bryan can't eat from 12am on the day of these tests so we always hope they bring him down early in the day. This test will comfirm the success of the past 3 procedures (embolizations). If the angiogram shows the sucess, then they will most likely schedule Bryan for brain surgery on Monday to remove the small AVM in the cerebullum portion of his brain.
Though he is not out of the woods yet, we can see the light. Bryan is getting nuggy to come home and the idea of another week in the ICU is a bit disheartening. He understands this is necessary for total recovery.
He continues to love those blog comments and is encouraged to know so many people are concerned and praying for him litteraly around the world. (AU, Hungry, Kenya, Israel, as well as coast to coast USA)
I will update the blog when we get the results of the angiogram.
It's been 14 days since Bryan had that first small bleed which was the warning signal for greater problems going on in his brain that would have otherwise been missed. So literally we are grateful for "little things". The family has settled into a hospital habit.... Becky is at Bryan's room at 8am while Merrie sleeps in and arrives around 11am so that Becky can go back to the hotel for a rest in the afternoon. The past several days they have done lots of crossword puzzles, played card games, and talked quietly. Sometimes Bryan participated, sometime he rested. Over the past week he has had Chinese food, Pizza, McDonald's burger, and Grandma June's Chicken noodle matzo ball soup. He enjoyed everything, but the chicken soup really did minister to his soul. Merrie and becky survive on PB&J, breakfast sandwich, cereal bars, and sandwihes from the little shop by the hospital entrance. Joe continues to visit brining the mail (thanks for all the cards, keep them coming), the laundry, bottled water, etc.
Today they have scheduled Bryan for another angiogram hopefully around 11am. Bryan can't eat from 12am on the day of these tests so we always hope they bring him down early in the day. This test will comfirm the success of the past 3 procedures (embolizations). If the angiogram shows the sucess, then they will most likely schedule Bryan for brain surgery on Monday to remove the small AVM in the cerebullum portion of his brain.
Though he is not out of the woods yet, we can see the light. Bryan is getting nuggy to come home and the idea of another week in the ICU is a bit disheartening. He understands this is necessary for total recovery.
He continues to love those blog comments and is encouraged to know so many people are concerned and praying for him litteraly around the world. (AU, Hungry, Kenya, Israel, as well as coast to coast USA)
I will update the blog when we get the results of the angiogram.
Wednesday, February 6, 2008
another of the same
Bryan has been sleeping a lot today, and he has also been playing games (of course) and doing crossword puzzles.
Several times a day Merrie and Becky print out your comments and read them to Bryan. He's really enjoying them and appreciates have that connection with you all.
Thanks for the prayers! Bryan is doing really well. God is so good all the time.
Several times a day Merrie and Becky print out your comments and read them to Bryan. He's really enjoying them and appreciates have that connection with you all.
Thanks for the prayers! Bryan is doing really well. God is so good all the time.
a low key day
Bryan had a good day yesterday (Tuesday). Our dad(Joe) came up to visit in the afternoon and they all just sat with Bryan. They talked when he wanted to talk and they let him sleep when he wanted to sleep. Bryan is being awakened by the bright light in his eyes every hour during the night again as part of their keeping a "close" watch on him while he's recovering from the las procedure.
Merrie and Becky got a lot of extra rest yesterday. They were both able to go back to the hotel through out the day and take a few hours to rest.
I'm sure today is going to be more of the same. But I'll let you know what's up when I hear from Boston.
Merrie and Becky got a lot of extra rest yesterday. They were both able to go back to the hotel through out the day and take a few hours to rest.
I'm sure today is going to be more of the same. But I'll let you know what's up when I hear from Boston.
Tuesday, February 5, 2008
Tuesday morning
Merrie and Becky went into see Bryan this morning expecting to see him still groggy but were pleasantly surprised to see him alert sitting up in bed and having just finished his breakfast (cereal and toast). Bryan wonders how a hospital can mess up toast but they did. :)
During the night Bryan rested in between the hourly checks and told Merrie and Becky this morning last night had good parts and bad parts but was so grateful for his nurse, Nora. Becky called several times during the night to check in and Merrie polished off a huge Hersey's special dark chocolate bar ("Thanks Debbie!!").
10:30am Bryan is presently having a CAT Scan, which is done regularly to insure the procedure went as planned without complications. They are expecting today to sit him up in the chair, allow him to eat what ever he wants to eat, and stay comfortable. They are keeping a close monitor on him with hourly checks. 11:10am- Bryan is back from the CAT Scan and all checks out well.
This week they'll continue to keep a close eye on him with no more procedures planned for the week. They are just giving him (his brain) time to adjust.
Last night the Ray Boltz song, "The Anchor Holds" was running through Merrie's mind and she knows that the Lord has been their Anchor throughout this whole process. Below is the chorus of the song:
During the night Bryan rested in between the hourly checks and told Merrie and Becky this morning last night had good parts and bad parts but was so grateful for his nurse, Nora. Becky called several times during the night to check in and Merrie polished off a huge Hersey's special dark chocolate bar ("Thanks Debbie!!").
10:30am Bryan is presently having a CAT Scan, which is done regularly to insure the procedure went as planned without complications. They are expecting today to sit him up in the chair, allow him to eat what ever he wants to eat, and stay comfortable. They are keeping a close monitor on him with hourly checks. 11:10am- Bryan is back from the CAT Scan and all checks out well.
This week they'll continue to keep a close eye on him with no more procedures planned for the week. They are just giving him (his brain) time to adjust.
Last night the Ray Boltz song, "The Anchor Holds" was running through Merrie's mind and she knows that the Lord has been their Anchor throughout this whole process. Below is the chorus of the song:
The anchor holds Though the ship is battered The anchor holds Though the sails are torn I have fallen on my knees As I faced the raging seas The anchor holds In spite of the storm
Monday, February 4, 2008
update
As of 10pm, Bryan is back in the surgical ICU. This procedure was mainly focused on the AVF. Dr Malek said they had to do some "fancy tricks" to complete the procedure successfully today. Primarily which involved blocking the largest feeder vessel in the AVF.
Bryan is being heavily monitored. He is resting comfortably, bundled up. Bryan recognized Merrie and Becky. Doctor has checked all responses- Vision and everything checks out fine- Praise the Lord!
They will watch him carefully over the next week. And pending everything stays steady; Doctors plan to surgically remove the smaller AVM next Monday. This means 2 more weeks for Merrie and Becky to stay in Boston.
Becky is doing really well. She held up wonderfully well today. Keep the comments and prayers coming. Bryan LOVES to be connected.
Thank you so much for all the prayers!
Bryan is being heavily monitored. He is resting comfortably, bundled up. Bryan recognized Merrie and Becky. Doctor has checked all responses- Vision and everything checks out fine- Praise the Lord!
They will watch him carefully over the next week. And pending everything stays steady; Doctors plan to surgically remove the smaller AVM next Monday. This means 2 more weeks for Merrie and Becky to stay in Boston.
Becky is doing really well. She held up wonderfully well today. Keep the comments and prayers coming. Bryan LOVES to be connected.
Thank you so much for all the prayers!
prayer!!
Immediate prayer need for Bryan,
Bryan just under went the biggest and most critical procedure yet. The doctor's concern is that with this procedure they redirected 60% of the blood flow in Bryan's brain (as opposed to the other 2 procedures which was about 20%).
Bryan will be under very close watch for the next few hours (7-9pmEST). They are concerned about his vision among other things. Please pray for Bryan and a full recovery from this procedure and that his brain will adjust quickly.
I'll post an update when I hear.
Bryan just under went the biggest and most critical procedure yet. The doctor's concern is that with this procedure they redirected 60% of the blood flow in Bryan's brain (as opposed to the other 2 procedures which was about 20%).
Bryan will be under very close watch for the next few hours (7-9pmEST). They are concerned about his vision among other things. Please pray for Bryan and a full recovery from this procedure and that his brain will adjust quickly.
I'll post an update when I hear.
How to help
My mom (Merrie) mentioned to me that several people are asking how they can help. So I'm reposting a previous blog.
A close friend of Bryan's has set up a fund for some of the upcoming expenses. If anyone would like to help Merrie and Becky with the expenses of living in Boston for 2+ weeks (hotel bills, food, misc, etc. which will probablly end up around $3000) please send a donation for the DoubleTree fund. Send and write checks to:
Debbie Moore
C/O Faith Tabernacle
15 Kibbie Rd
East Longmeadow, MA 01028
(and desginate it to the DoubleTree fund or Bryan Kaye)
Please send all cards for Bryan and Becky to their home address (below). Joe will be picking up their mail everyday and bring any cards to them in Boston.
Bryan and Becky Kaye
101 Somers Rd
East Longmeadow, MA 01028
A close friend of Bryan's has set up a fund for some of the upcoming expenses. If anyone would like to help Merrie and Becky with the expenses of living in Boston for 2+ weeks (hotel bills, food, misc, etc. which will probablly end up around $3000) please send a donation for the DoubleTree fund. Send and write checks to:
Debbie Moore
C/O Faith Tabernacle
15 Kibbie Rd
East Longmeadow, MA 01028
(and desginate it to the DoubleTree fund or Bryan Kaye)
Please send all cards for Bryan and Becky to their home address (below). Joe will be picking up their mail everyday and bring any cards to them in Boston.
Bryan and Becky Kaye
101 Somers Rd
East Longmeadow, MA 01028
yesterday's events and what's happening today
This was yesterday afternoon. My cousin had bought a Pats helmet earlier in the season with all the official signatures of the players and coach. They brought it in yesterday for Bryan to see. He looks excited about it. I wonder if the helmet is worth something now :(
Bryan had a lot of visitors yesterday - My aunt and cousin and her husband came in to chat with Bryan for a while and he watched the game with several people. He was very chatty and feeling good. I haven't heard anything since before the "game" though.
Bryan is scheduled to have the 3rd procedure at 11am(EST). Please pray! Bryan wants to be home by this weekend.
I'll post an update when I hear.
Saturday, February 2, 2008
Today's events in Boston
Bryan was able to take a nice hot shower today for which he was very grateful.
Our grandparents came in to visit with our dad and brought some homemade Chicken soup.
Our aunt, uncle and little cousin came to visit too.
Bryan's had a lot of visitors and he is feeling great. Besides that it's been a quiet day, nothing to report.
Our grandparents came in to visit with our dad and brought some homemade Chicken soup.
Our aunt, uncle and little cousin came to visit too.
Bryan's had a lot of visitors and he is feeling great. Besides that it's been a quiet day, nothing to report.
Friday, February 1, 2008
TGIF
Well I (Jenny) actually got to talk to Bubba this morning. My mom had her cell phone in the room when I called her. I got them when they were alone in the room so no nurse could object.
He sounded great. His usual chatty self. He told me he was feeling really good. and how annoyed the nighttime hourly bright light in the eyes was. He told me how hungry he gets when they won't let him eat, but now he can eat whatever he wants because he isn't having any medical prcedure doing again until Monday. He was able to tell me the story of this whole ordeal from his point of view.
He told me how much he appreciates your comments....He told me several times.
As you know, Bryan thrives on people and hearing from all of you means so much to him. The prayers are a huge encouragment. Becky and my mom have been counting the states and countries that have people praying for him..... It's amazing how many people all over the world have been covering Bryan in prayer. And we know there are people we will never know about. But God is good all the time.
Our Aunt Jamie (who lives in the area) brought Bryan some beef stew and challah bread today. She also brought him some Patroits paraphernalia for Sunday.
Thanks again for letting Bry (and Becky and the families) know how much he (and we) are loved.
He sounded great. His usual chatty self. He told me he was feeling really good. and how annoyed the nighttime hourly bright light in the eyes was. He told me how hungry he gets when they won't let him eat, but now he can eat whatever he wants because he isn't having any medical prcedure doing again until Monday. He was able to tell me the story of this whole ordeal from his point of view.
He told me how much he appreciates your comments....He told me several times.
As you know, Bryan thrives on people and hearing from all of you means so much to him. The prayers are a huge encouragment. Becky and my mom have been counting the states and countries that have people praying for him..... It's amazing how many people all over the world have been covering Bryan in prayer. And we know there are people we will never know about. But God is good all the time.
Our Aunt Jamie (who lives in the area) brought Bryan some beef stew and challah bread today. She also brought him some Patroits paraphernalia for Sunday.
Thanks again for letting Bry (and Becky and the families) know how much he (and we) are loved.
Thursday, January 31, 2008
Merrie wanted me to share this with you:
As Thursday comes to a close, we can't count the number of prayers answered.
1. Bryan was taken to the procedure earlier than expected. (8am) which means he didn't have very much time to be hungry this morning.
2. There was 3 hours of prep for the procedure which started at 11am.
3. The procedure was more complicated than expected because they found an AVF which had to be corrected with a balloon and coil and it was in a very difficult part of the brain to reach. But all went EXREMELY successful.
4. About 2pm he came out of anthesia with no neurological side effects and by 3pm he was his usual self joking with the nurses and doctors and still hungry.
5. Tonight he is his usual self because he hasn't had much opprotunity talk and now he's making up for it.
6. Becky and Merrie have caught up on some much needed sleep and were able to go out to a little restaruant for dinner.
7. When Dr Malek came back to check Bryan, Bryan asked for two things-
The 3rd procedure is scheduled for Monday. So he should be in great shape for Sunday's Super Bowl. After the 3rd procedure on Monday, it will be determined how best to remove the small seconary AVM with surgery or radiation.
Bryan loves to read the comments on this blog. Becky and Merrie are able to update him daily-- KEEP THEM COMING!!
As Thursday comes to a close, we can't count the number of prayers answered.
1. Bryan was taken to the procedure earlier than expected. (8am) which means he didn't have very much time to be hungry this morning.
2. There was 3 hours of prep for the procedure which started at 11am.
3. The procedure was more complicated than expected because they found an AVF which had to be corrected with a balloon and coil and it was in a very difficult part of the brain to reach. But all went EXREMELY successful.
4. About 2pm he came out of anthesia with no neurological side effects and by 3pm he was his usual self joking with the nurses and doctors and still hungry.
5. Tonight he is his usual self because he hasn't had much opprotunity talk and now he's making up for it.
6. Becky and Merrie have caught up on some much needed sleep and were able to go out to a little restaruant for dinner.
7. When Dr Malek came back to check Bryan, Bryan asked for two things-
He did want them to shine a bright light in his eyes every hour so he could
get some sleep.
(Dr. Malek agreed to change it to every 4 hours because the high
pressure situation in his vascular system in his brain has been reduced back to
normal)
He also wanted extra blood pressure medication so he can watch the
Super Bowl. (Dr Malek said only if he is a Patriots fan)
The 3rd procedure is scheduled for Monday. So he should be in great shape for Sunday's Super Bowl. After the 3rd procedure on Monday, it will be determined how best to remove the small seconary AVM with surgery or radiation.
Bryan loves to read the comments on this blog. Becky and Merrie are able to update him daily-- KEEP THEM COMING!!
Hungry again
Bryan is back in his room now and the first thing he said when he woke up was "hummmm something smells good" (a nurse had some food outside his room).
This is a VERY good sign he's doing well. Another PTL is that he isn't nauseous. Bryan was concerned about being nauseous again after this procedure, but he's feeling good.
This is a VERY good sign he's doing well. Another PTL is that he isn't nauseous. Bryan was concerned about being nauseous again after this procedure, but he's feeling good.
He's out!
PTL! Bryan came through this second procedure very well. This was a big one, it was at a hard to reach place. But it went very well.
They are now stablizing him and then going to move him back to his room and stablize him again (his blood pressure, etc).
Thank you again for the prayers.
My mom (Merrie) says that he'll be all set to watch the SuperBowl this weekend and they aren't planning the 3rd procedure till next week.
They are now stablizing him and then going to move him back to his room and stablize him again (his blood pressure, etc).
Thank you again for the prayers.
My mom (Merrie) says that he'll be all set to watch the SuperBowl this weekend and they aren't planning the 3rd procedure till next week.
He's in!
They took Bryan in for the second Angiogram and procedure this morning at around 9:00am(EST). At around 11am the doctor will come out and explain whay he saw in the Angiogram and what they are going to do next.
Bryan will be under till this afternoon. I'll let you know when I hear more. Keep praying!
Bryan will be under till this afternoon. I'll let you know when I hear more. Keep praying!
Wednesday, January 30, 2008
Second procedure scheduled
Bryan will be going in for the second procedure at 3:00pm (eastern time). He is going to have the Angiogram and then the procedure. He will be under for about 6 hours. I'll post an update late tonight when he's back in his room.
Please pray for him!
2:45pm (eastern) Bryan's procedure has been moved up to 4:30pm(eastern)
As of 4:30pm(EST), The Doctors have decided to wait until tomorrow to do the procedure. Bryan is scheduled for 11am tomorrow. This decision was made because the Dr wanted to have as much staff available as possible and now that it's in the evening there isn't as much staff as during the day.
Today Bryan watched TV game shows and did crossword puzzles. He is doing very well. He was VERY hungry all day but they weren't going to let him eat because of the surgery. Now that it's rescheduled for tomorrow, he was able to have his grilled cheese and chicken soup (WAIT... HE'S CHANGED IT TO YANKEE POT ROAST) for dinner tonight. He was very thankful to be able to eat something :)
Becky is doing very well also. She's hangin in there.
Please pray for him!
2:45pm (eastern) Bryan's procedure has been moved up to 4:30pm(eastern)
As of 4:30pm(EST), The Doctors have decided to wait until tomorrow to do the procedure. Bryan is scheduled for 11am tomorrow. This decision was made because the Dr wanted to have as much staff available as possible and now that it's in the evening there isn't as much staff as during the day.
Today Bryan watched TV game shows and did crossword puzzles. He is doing very well. He was VERY hungry all day but they weren't going to let him eat because of the surgery. Now that it's rescheduled for tomorrow, he was able to have his grilled cheese and chicken soup (WAIT... HE'S CHANGED IT TO YANKEE POT ROAST) for dinner tonight. He was very thankful to be able to eat something :)
Becky is doing very well also. She's hangin in there.
Wednesday
Wednesday
10:00am There is so much to be thankful for.
Bryan had a good night last night. He was able to rest. His blood pressure remained steady (around 114). He passes his hourly neurology tests with flying colors. His attitude is his usual positive self. This is an outward sign of his deep and steady walk with his Lord.
Becky’s parents, Bob and Marsha Callero, arrived from southern PA last night adding another pillar of strength for Bryan and Becky. They also brought a care package from Becky’s sister, Sarah. It included a beautiful pair of fuzzy pink slippers to comfort Becky’s swelling feet.
This blog sight which is allowing hundreds of Bryan’s family and friends too stay posted and to know what to specifically pray for. Bryan feels bathed in the prayers of the saints across the country and literally around the world.
Another thing to be thankful for is that Joe continues to commute back and forth managing the two Kaye households, the dogs, the laundry, the mail, etc, etc.
And yesterday, Merrie and Joe’s good friend Betsy (The ICU nurse from Baystate who helped coordinate Bryan’s move to Boston) came in on her day off and brought in from the Faith Tabernacle family a huge bag of snacks, fruits, sweets, and a case of bottled water. THANK YOU – THANK YOU- THANK YOU!!! Betsy remains a tremendous support to the family in this difficult time.
Merrie and Becky were able to get some good sleep; snuggled in the comfortable beds at the DoubleTree knowing they are literally 5 minutes from Bryan’s bedside should they receive an emergency call. The ICU staff welcomes Becky’s check-in calls during the night.
Bryan Status:
Yesterday (Tuesday) was a “watching day”. Today is going to be a “waiting day”. Waiting for Bryan to go down for his next Angiogram and procedure. Waiting for the results of the test which will determine exactly what the procedure will be. Waiting for the procedure to be over. Waiting for Bryan to come out of anesthesia. Waiting to see if the procedure caused any deficits or disturbances or side effects. Waiting for his body to stabilize. Waiting for his blood pressure to stabilize. Waiting for the nausea to be controlled (both the anesthesia and the “glue” they are using to seal off the veins cause nausea). Waiting for Bryan to feel comfortable.
The test and the procedure will take about 6-7 hours and we will post the time that it will happen when we hear. It blesses the family beyond words to know how much they are loved and cared for by so many concerned saints.
We all know Bryan has a network of friends but never knew the magnitude of his connections. But then again we know Bryan….
10:00am There is so much to be thankful for.
Bryan had a good night last night. He was able to rest. His blood pressure remained steady (around 114). He passes his hourly neurology tests with flying colors. His attitude is his usual positive self. This is an outward sign of his deep and steady walk with his Lord.
Becky’s parents, Bob and Marsha Callero, arrived from southern PA last night adding another pillar of strength for Bryan and Becky. They also brought a care package from Becky’s sister, Sarah. It included a beautiful pair of fuzzy pink slippers to comfort Becky’s swelling feet.
This blog sight which is allowing hundreds of Bryan’s family and friends too stay posted and to know what to specifically pray for. Bryan feels bathed in the prayers of the saints across the country and literally around the world.
Another thing to be thankful for is that Joe continues to commute back and forth managing the two Kaye households, the dogs, the laundry, the mail, etc, etc.
And yesterday, Merrie and Joe’s good friend Betsy (The ICU nurse from Baystate who helped coordinate Bryan’s move to Boston) came in on her day off and brought in from the Faith Tabernacle family a huge bag of snacks, fruits, sweets, and a case of bottled water. THANK YOU – THANK YOU- THANK YOU!!! Betsy remains a tremendous support to the family in this difficult time.
Merrie and Becky were able to get some good sleep; snuggled in the comfortable beds at the DoubleTree knowing they are literally 5 minutes from Bryan’s bedside should they receive an emergency call. The ICU staff welcomes Becky’s check-in calls during the night.
Bryan Status:
Yesterday (Tuesday) was a “watching day”. Today is going to be a “waiting day”. Waiting for Bryan to go down for his next Angiogram and procedure. Waiting for the results of the test which will determine exactly what the procedure will be. Waiting for the procedure to be over. Waiting for Bryan to come out of anesthesia. Waiting to see if the procedure caused any deficits or disturbances or side effects. Waiting for his body to stabilize. Waiting for his blood pressure to stabilize. Waiting for the nausea to be controlled (both the anesthesia and the “glue” they are using to seal off the veins cause nausea). Waiting for Bryan to feel comfortable.
The test and the procedure will take about 6-7 hours and we will post the time that it will happen when we hear. It blesses the family beyond words to know how much they are loved and cared for by so many concerned saints.
We all know Bryan has a network of friends but never knew the magnitude of his connections. But then again we know Bryan….
Tuesday, January 29, 2008
Tuesday
Tuesday status
Dr Malek and his Neurologist team decided to not do the second procedure today to allow the blood flow in Bryan’s brain to stabilize after changing the pattern of the blood flow that Bryan’s brain has had since birth.
Bryan is in great spirits today and was finally able to have food. He choose Sugar Pops cereal for breakfast and a grilled cheese for lunch. Becky (and Joe and Merrie) has spent the day visiting, but care has to be taken for Bryan not too expend too much energy that might cause his blood pressure to increase. Assuming he remains stable, Dr’s will do the second procedure tomorrow (Wednesday).
Dr Malek and his Neurologist team decided to not do the second procedure today to allow the blood flow in Bryan’s brain to stabilize after changing the pattern of the blood flow that Bryan’s brain has had since birth.
Bryan is in great spirits today and was finally able to have food. He choose Sugar Pops cereal for breakfast and a grilled cheese for lunch. Becky (and Joe and Merrie) has spent the day visiting, but care has to be taken for Bryan not too expend too much energy that might cause his blood pressure to increase. Assuming he remains stable, Dr’s will do the second procedure tomorrow (Wednesday).
How to help
Bryan and Becky and the families have really been blessed by all the prayers and support and phone calls they have been getting.
A close friend of Bryan's has set up a fund for some of the upcoming expenses. If anyone would like to help Merrie and Becky with the expenses of living in Boston for 2+ weeks (hotel bills, food, misc, etc.) please send a donation for the DoubleTree fund. Send and write checks to:
Debbie Moore
C/O Faith Tabernacle
15 Kibbie Rd
East Longmeadow, MA 01028
Please send all cards for Bryan and Becky to their home address (below). Joe will be picking up their mail everyday and bring any cards to them in Boston.
Bryan and Becky Kaye
101 Somers Rd
East Longmeadow, MA 01028
A close friend of Bryan's has set up a fund for some of the upcoming expenses. If anyone would like to help Merrie and Becky with the expenses of living in Boston for 2+ weeks (hotel bills, food, misc, etc.) please send a donation for the DoubleTree fund. Send and write checks to:
Debbie Moore
C/O Faith Tabernacle
15 Kibbie Rd
East Longmeadow, MA 01028
Please send all cards for Bryan and Becky to their home address (below). Joe will be picking up their mail everyday and bring any cards to them in Boston.
Bryan and Becky Kaye
101 Somers Rd
East Longmeadow, MA 01028
And then
Monday
8:00am Bryan had the Angiogram which consists of dye being sent up through the vascular system of the brain to pinpoint all the issues and trouble spots they were looking for- to develop a map of the vascular system in his brain. Bryan was mostly awake because he had to participate.
11:00am Becky, Merrie, and Joe met with Dr Malek who told them the results of the test before he went back in to do the procedure. The results showed a small second AVM (where the bleed originally happened) in the Cerebellum. He also explained he was going to do the procedure of stopping the blood to the large AVM in a three step process over the upcoming week. And because the smaller AVM could not be affected by this procedure, he would most likely have to surgically remove it. Because this smaller AVM was getting a blood supply from the larger AVM after the third procedure there would be less blood there and a lower risk at the time of surgery. Obviously the family was a bit shaken with this news, but they continued to feel the comfort and support of the many many many friends and family for them and the situation.
3:00pm Bryan came through the procedure and was awakened from the anesthesia showing no residual effects. This was HUGE good news.
5:00pm Becky, Merrie, and Joe were able to see him in his room in the surgical ICU, where they were attempting to stabilize Bryan’s blood pressure at a very low rate (under 120). Bryan was absolutely miserable, complaining of all the aches and pains, but the family was relieved because of the fact that he could complain was a very good sign. The family left as the staff continued to settle Bryan in. Their surgical ICU is a unit which allows for intense monitoring with a one-on-one patient to ICU nurse.
7:00pm Joe had early in the day checked Becky and Merrie into the DoubleTree hotel across the street allowing them to be back to Bryan’s room in 5 minutes should an emergency arise. Knowing that Bryan was in good hands, Becky and Merrie went back to the hotel room to try to get a good night’s sleep. The ICU nurse said that she would call if she needed them to come back at any time. Totally exhausted Becky and Merrie said goodbye to Joe and went to the room. The room was so inviting after spending 2 nights sleeping in chairs.
8:00am Bryan had the Angiogram which consists of dye being sent up through the vascular system of the brain to pinpoint all the issues and trouble spots they were looking for- to develop a map of the vascular system in his brain. Bryan was mostly awake because he had to participate.
11:00am Becky, Merrie, and Joe met with Dr Malek who told them the results of the test before he went back in to do the procedure. The results showed a small second AVM (where the bleed originally happened) in the Cerebellum. He also explained he was going to do the procedure of stopping the blood to the large AVM in a three step process over the upcoming week. And because the smaller AVM could not be affected by this procedure, he would most likely have to surgically remove it. Because this smaller AVM was getting a blood supply from the larger AVM after the third procedure there would be less blood there and a lower risk at the time of surgery. Obviously the family was a bit shaken with this news, but they continued to feel the comfort and support of the many many many friends and family for them and the situation.
3:00pm Bryan came through the procedure and was awakened from the anesthesia showing no residual effects. This was HUGE good news.
5:00pm Becky, Merrie, and Joe were able to see him in his room in the surgical ICU, where they were attempting to stabilize Bryan’s blood pressure at a very low rate (under 120). Bryan was absolutely miserable, complaining of all the aches and pains, but the family was relieved because of the fact that he could complain was a very good sign. The family left as the staff continued to settle Bryan in. Their surgical ICU is a unit which allows for intense monitoring with a one-on-one patient to ICU nurse.
7:00pm Joe had early in the day checked Becky and Merrie into the DoubleTree hotel across the street allowing them to be back to Bryan’s room in 5 minutes should an emergency arise. Knowing that Bryan was in good hands, Becky and Merrie went back to the hotel room to try to get a good night’s sleep. The ICU nurse said that she would call if she needed them to come back at any time. Totally exhausted Becky and Merrie said goodbye to Joe and went to the room. The room was so inviting after spending 2 nights sleeping in chairs.
What happened next
Sunday
8:00am Baystate Neurology reviewed labs and recommended that Bryan be transported to Tufts New England Medical Center in Boston. As a huge answer to prayer, one of the top Cerebral Vascular Surgeons in the world (Dr. Adel Malek) was available to take Bryan’s case. And within the hour all arrangements were made and a room was ready and waited at the ICU in Tufts. Becky and Bryan’s parent drove home to shower and pack a bag.
10:30am Bryan’s parents drove Becky to Boston. They arrived before the ambulance so they were able to see them bring Bryan in. Bryan said later the ambulance got lost and drove over several curbs before finding the right entrance. An ICU nurse from Baystate stayed with Bryan until he was actually checked into the hospital.
3:00pm A resident Neurologist visited Bryan’s room and explained in more detail the diagnosis.
Diagnosis: An AVM (Arterial Venus Malformation) was found in the cortex area of his brain. Simply put, an AVM is a little tangle of blood vessels. Many people, like Bryan, are born with AVMs and never know they have them. But Bryan’s was in a place in the brain that was effecting the blood draining from the brain causing blood to backup a little bit and cause pressure on all the veins in his brain. This then caused one of the veins in the Cerebellum to bleed. This bleed was considered a small stroke- thankfully not having a large consequence.
The Neurologist also said they were going to do an Angiogram in the morning to have even a better picture of what’s going on. She explained the criticalness of the situation and that Bryan would be monitored extremely carefully over the next few days. While the Neurologist was talking to Bryan, Becky, and Merrie, Bryan had an allergic reaction to the blood pressure medication and they tried to counter act that with morphine to which he had a secondary allergic reaction. They immediately treated the reactions with Benadryl and the symptoms calmed down. Anyone who knows Bryan well, knows how much he dislikes medicines and he said this just confirmed his beliefs that they are in fact not good for the body
At this point Bryan was back to his cheerful self and had his sense of humor. He was also extremely hungry, but they wouldn’t feed him (he hadn’t eaten since 6pm Friday). All they would let him eat was ice chips. Becky was still holding up strong, but really tired. They whole family appreciated all the prayers that were going out on his behalf and really felt they were walking in God’s favor every step.
10:00pm The Neurologist returned to the room and said that Dr Malek wanted to have a phone consultation with Bryan and his family. At this point Bryan was very tired and asked us to go to the waiting room to do the talking. Merrie and Becky went and received Dr Malek’s phone call. He explained the seriousness of the situation and the high risk that Bryan was at because of the AVM. She was going to so the Angiogram in the morning followed by a procedure to begin to seal off the blood supply to the AVM causing it to become nonfunctioning and thus begin to restore the proper blood flow in his brain. This procedure is called an (were trying to remember the technical term) where the doctor goes up through the groin to the brain and glues together the veins feeding the AVM. After all the questions were asked and some tears shed at the seriousness of the situation the realization that a plan was in affect was comforting.
8:00am Baystate Neurology reviewed labs and recommended that Bryan be transported to Tufts New England Medical Center in Boston. As a huge answer to prayer, one of the top Cerebral Vascular Surgeons in the world (Dr. Adel Malek) was available to take Bryan’s case. And within the hour all arrangements were made and a room was ready and waited at the ICU in Tufts. Becky and Bryan’s parent drove home to shower and pack a bag.
10:30am Bryan’s parents drove Becky to Boston. They arrived before the ambulance so they were able to see them bring Bryan in. Bryan said later the ambulance got lost and drove over several curbs before finding the right entrance. An ICU nurse from Baystate stayed with Bryan until he was actually checked into the hospital.
3:00pm A resident Neurologist visited Bryan’s room and explained in more detail the diagnosis.
Diagnosis: An AVM (Arterial Venus Malformation) was found in the cortex area of his brain. Simply put, an AVM is a little tangle of blood vessels. Many people, like Bryan, are born with AVMs and never know they have them. But Bryan’s was in a place in the brain that was effecting the blood draining from the brain causing blood to backup a little bit and cause pressure on all the veins in his brain. This then caused one of the veins in the Cerebellum to bleed. This bleed was considered a small stroke- thankfully not having a large consequence.
The Neurologist also said they were going to do an Angiogram in the morning to have even a better picture of what’s going on. She explained the criticalness of the situation and that Bryan would be monitored extremely carefully over the next few days. While the Neurologist was talking to Bryan, Becky, and Merrie, Bryan had an allergic reaction to the blood pressure medication and they tried to counter act that with morphine to which he had a secondary allergic reaction. They immediately treated the reactions with Benadryl and the symptoms calmed down. Anyone who knows Bryan well, knows how much he dislikes medicines and he said this just confirmed his beliefs that they are in fact not good for the body
At this point Bryan was back to his cheerful self and had his sense of humor. He was also extremely hungry, but they wouldn’t feed him (he hadn’t eaten since 6pm Friday). All they would let him eat was ice chips. Becky was still holding up strong, but really tired. They whole family appreciated all the prayers that were going out on his behalf and really felt they were walking in God’s favor every step.
10:00pm The Neurologist returned to the room and said that Dr Malek wanted to have a phone consultation with Bryan and his family. At this point Bryan was very tired and asked us to go to the waiting room to do the talking. Merrie and Becky went and received Dr Malek’s phone call. He explained the seriousness of the situation and the high risk that Bryan was at because of the AVM. She was going to so the Angiogram in the morning followed by a procedure to begin to seal off the blood supply to the AVM causing it to become nonfunctioning and thus begin to restore the proper blood flow in his brain. This procedure is called an (were trying to remember the technical term) where the doctor goes up through the groin to the brain and glues together the veins feeding the AVM. After all the questions were asked and some tears shed at the seriousness of the situation the realization that a plan was in affect was comforting.
What happened to Bryan
On Friday night, January 25th, Bryan was doing one of his favorite things, playing games and having pizza with friends. Later that night about 12:30am he said goodnight to Becky who was dozing off on the couch. When he got into bed and when his head hit the pillow he had a sudden onset of violent vomiting, and blurred vision. He got up to get to the bathroom downstairs and he was extremely unsteady on his feet. Knowing something was seriously wrong, he had Becky call 911. The Ambulance took him to the ER at Baystate Med center, and Becky followed in the car. At the ER, he continued to be severely nauseated and unstable on his feet and blurred vision. The doctors initially thought it could be food poisoning or a virus. But because he continued to remain unstable on his feet, and impaired vision, at 10am on Saturday they admitted him into the hospital. Before Bryan’s mom (Merrie) got to the hospital she brought Bryan and Becky’s dog Annie to her house to stay with her canine boyfriends, Max and Tovi. When she got to the hospital and they found the symptoms were not improving. Throughout this Becky was doing well with the stress of the situation.
Saturday 3:00pm Nausea improved, vision a little improved, but still very unstable on his feet. Doctors decided to do a CAT scan.
5:00pm CAT scan showed a small amount of blood in the Cerebellum section of his brain. This is the part of the brain that controls your balance and part of your vision and a nausea center. They then scheduled a MRI for a more detailed diagnosis. Bryan’s dad (Joe) arrived to hear this report.
7:00pm Neurology report from the MRI showed abnormal vascular reading. They admitted him to the ICU for monitoring.
10:00pm Neurologists consulted on the findings and decided to hold Bryan overnight and consult with a larger Neurology department on Sunday Morning. At this point Bryan began to rest comfortably and throughout the night. The ICU was kind enough to set up a bed to let Becky stay with Bryan. Joe went home to care for the dogs and Merrie tried to get rest in the waited room. During this time a family friend who works in that ICU came for support and over see Bryan’s care.
Saturday 3:00pm Nausea improved, vision a little improved, but still very unstable on his feet. Doctors decided to do a CAT scan.
5:00pm CAT scan showed a small amount of blood in the Cerebellum section of his brain. This is the part of the brain that controls your balance and part of your vision and a nausea center. They then scheduled a MRI for a more detailed diagnosis. Bryan’s dad (Joe) arrived to hear this report.
7:00pm Neurology report from the MRI showed abnormal vascular reading. They admitted him to the ICU for monitoring.
10:00pm Neurologists consulted on the findings and decided to hold Bryan overnight and consult with a larger Neurology department on Sunday Morning. At this point Bryan began to rest comfortably and throughout the night. The ICU was kind enough to set up a bed to let Becky stay with Bryan. Joe went home to care for the dogs and Merrie tried to get rest in the waited room. During this time a family friend who works in that ICU came for support and over see Bryan’s care.
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